That’s right! $1200 so far! I am so so impressed by how generous our friends, family and followers are!
So, I was totally off with the date of the skate…it is actually this weekend, January 23rd. Our goal is to make this 23rd better than the previous 2. Jan. 23rd, 2009 is the day the girls were diagnosed with SMA. Jan. 23rd, 2008 is the day that our dear friend, Little Joe, left us. I’ve never really talked about Little Joe on here before, but through his suffering, he taught us something very very important. He taught us, as a circle of friends, how important we are to each other; how much we all love each other; how much we are really there for each other. I’ve often wondered if other groups of friends function like our little family? I know for a fact I could not have survived this last year without the love and support of everybody around me and I hope that others are lucky enough to feel that same love and support from their friends.
I'm so blessed to be a part of our family and I'd be lost without it too…love you Little Joe, love you girlies and I miss you all every single day!!!
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I too am glad to be part of the family. You are amazing, look at you exceeding your fundraising goal!
Are you guys voting in Facebook's Chase Community Giving Program for the Gwendolyn Strong Foundation?? They have a real chance at winning anywhere from $100,000 to $1 million, which will go to SMA research and awareness. Voting ends Friday Jan. 22nd at midnight http://voteforSMA.com
I used to read your blogall the time, and I had to have my computer worked on, and lost ALL of my bookmarks. I am slowly trying to find all of them again, I had so many I can't remember them all. I have never commented before (that I remember), but I hope you all are doing well. My dear friend lost her 5 month old son to SMA a little over a year ago; my heart goes out to you.
I hope you and all your friend can come vote for GSF so that we can help fund research and find a cure!!
xoxox~
Hi. I nabbed your blog URL from someone's comment at voteforsma.com. I just wanted to introduce myself. I live in Phoenix, and my twins are now 2.5 years old. They both have SMA type 2. I don't know of many families with twins who are/were both affected by SMA, so I wanted to say hi, and that I'm so sorry for your loss. If you're not a member of SMA Space http://smaspace.ning.com/ you should consider joining. When you apply for membership, just give my name, Cassandra. My blog is bahamasbahamasbahamas.blogspot.com. I look forward to following your blog. xo
p.s. I meant to say, if you join SMA Space, mention me as the one who referred you. Nate and I are buddies, and he'll know who you mean. 😉
Thinking of you! I definitely want to see pics of your skate-a-thon. I would so join in if I could! I've skated many laps at that rink and would love to be able to skate some for Sydney and Carynne!